Archive | March, 2012

Rare disease day and genetic testing

Yesterday, Leap Day, was Rare Disease Day.  Makes sense.  Anyway, it got me thinking about our family’s recent experience with rare diseases and what they mean for the future. I was recently diagnosed with Ehlers-Danlos Syndrome.  It’s a rare genetic disease that causes problems with tissues containing collagen.  Without making this a page about everything […]

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